The Pulse Healthcare Equality Project is an independent, community-based program dedicated to improving the quality and safety of medical care for patients belonging to at-risk groups: ethnic and racial minorities, those who have certain specific diseases, and those belonging to any vulnerable or discriminated-against community outside the mainstream.
In small or large groups, when people share their experiences, others learn. Pulse’s Patient Activation Through Community Conversations (PACC) program creates a forum for people to share their experiences, providing those in similar circumstances with insight and recommendations. PACC is not meant to be a “support group” but instead a learning group in which participants facing healthcare decisions may benefit from the group's conversations. To learn more see PACC
I-Patient discussion groups are safe spaces for building trusting relationships enabling patients to share information and become empowered to get involved in their own care and the care of their loved ones. Participants can share their experiences and seek advice from peers at three weekly face-to-face meetings guided by a trained patient advocate and facilitator. Participants are often encouraged to find answers from within their own comfort-zones.
We expect that participants will assist in this service by sharing their knowledge and experiences with the other participants as well as taking away important information to help ensure their own best outcomes. Participants are encouraged to share solutions with others by telling the group what has worked for them, rather than what others should do. I-Patient discussion groups promote a positive outcome in healthcare and build strong and engaging relationships between the patient, their family and the healthcare team.
Started in 2014, PPS is a group of professionals (current or retired) who've had direct contact with patients or their family members. PPS meets monthly to discuss patient safety issues and concerns. Topics usually are about what is important to the public about safe quality care. Meetings are usually held over dinner and are very informal. A PPS speaker’s bureau is made up of medical professionals who educate the community on a variety of topics. (Ask about starting a PPS in your community)
Pulse will teach families about organizing Care Teams
for the patient which may include:
• Record keeping
• A Designated Medication Manager (DMM)
• Listening and Communication Skills
• Assisting in medical appointments, discharge
planning, transportation and much, much more.
Family Centered Patient Advocate Graduates
If you are concerned and are in need of immediate support, or feel there is a breakdown in care coordination between you and your medical team, we may make bedside visits to help with communication and advocacy services.
It’s never too early to learn about advocating for your family, about medication safety or
keeping track of your medical tests and records. Teens, middle school and high school
programs are available. Participants learn about being a smart patient in a fun,
non-threatening and interactive environment. Learn more here
Critical Communication: Using Plain Language to Reduce Medical Errors has been developed to reflect the community-building work of Pulse. Critical Communication takes the world-wide health literacy movement in new directions. It sees health literacy as a two-way street that requires patients to speak up when they don’t understand their health care information, and encourages doctors and hospitals to provide that information in clear ways.
Critical Communication seeks to improve the ways patients, their families and health care providers relate to one another in speech, in writing and in non-verbal behavior. Critical Communication empowers patients to ask for information, while putting the onus on health care providers to make the information understandable.
Click here to read the white paper "Critical Communication: Using Plain Language to Reduce Medical Errors"
Pulse also presents patient safety information to medical professionals, students and allied health care workers. A number of topics are available.
This is a more in-depth and community-based training that will enable the patient's family and friends to understand the role they play in patient safety as supporters or advocates. Program length is totals nine hours and training is usually done in two or three sessions. For private groups, this workshop can be tailored by Pulse CPSEA to best meet your group needs. Classes are held for the public two or three times a year. Fees for this training can be offered through sponsorship opportunities and there are reduced rates in special circumstances.
Some of our patient safety topics include:
• Avoiding Falls
• Infection Prevention
• Medication Safety
• Surgery Safety
• Communication Skills
• Discharge Planning
• Informed Consent
• Standards of Care
• Health Literacy
• Care Partners
• Advance Directives
One-on-one peer support or counseling is available following a medical injury or unplanned outcome in a patient’s care. Support groups that focus on solutions are set up on an as-needed basis. One-on-one support (usually two sessions) is offered by appointment.
PULSE Center for Patient Safety Education & Advocacy
Pulse CPSEA © 2014 | All Rights Reserved
If your organization is looking for a speaker, the Pulse CPSEA Introduction to Patient Safety is a topic worth considering. A one-hour community-based training to help patients, family and friends understand their role in patient safety. A Pulse representative will work with you to tailor the training topics to best meet your audience needs. Medical errors are now the third leading cause of death in the country. Since 1996 Pulse has worked closely with patient safety experts to develop programs for the general public on reducing falls in hospitals, reducing hospital acquired infections, avoiding medication errors and support in discharge planning while improving health literacy and communication skills. Presentations are thought provoking, inspiring, fun and interactive.